Mental Health

Mental health refers to psychological, emotional, and social well-being. While most people with chronic conditions focus on their physical health, mental health is often ignored. Our body and mind are interconnected, therefore, it’s important to take care of both. Having a connective tissue condition isn’t easy, so give your mind the TLC it needs.

Together with the Marfan Foundation we have a collection useful mental health resources, including a Help and Resource Center, Virtual Support Groups, and so much more.

Are you experiencing a crisis? Dial 988 for Suicide Hotline in the U.S. or visit Lifeline (988lifeline.org). Outside the U.S. visit International Suicide Resources.

 

Upcoming Virtual Support Groups

Events
Coping with Grief and Loss
Apr 8
Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful. If you have lost a loved one to Marfan syndrome or a related disorder and would like to connect with others who know what you are going through, please sign up for this group.

LDS Connect Support Group
Apr 10
LDS Connect Support Group

Have you been diagnosed with Loeys-Dietz syndrome? This group is a space to talk and connect with people in the community and share what you’re going through with others who understand. The group meets on the second Thursday of every month from 7-8 pm ET.

A Time to Talk: Monday Matters!
Apr 14
A Time to Talk: Monday Matters!

Join others in our connective tissue condition communities to share concerns and discuss issues related to everyday life. You will feel supported, heard, and enjoy the time spent with others.

Kids Club
Apr 15
Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.

Support for Parents/Guardians of Children w/Marfan, LDS, related conditions
Apr 16
Support for Parents/Guardians of Children w/Marfan, LDS, related conditions

Are you are a parent or guardian of a child with Marfan syndrome, Loeys-Dietz syndrome or a related connective tissue condition? Is your child 18 years old and younger? If so, we invite you to join other parents to discuss the challenges of raising a child with one of these conditions.

Conexiones: Estamos juntos (impartido en español)
Apr 16
Conexiones: Estamos juntos (impartido en español)

Conexiones: Grupo de apoyo virtual para establecer conexiones con otras personas que tienen condiciones del tejido conectivo. (impartido en español). Una vez al mes.

Presentado por Kathleen Bolton del Centro de Ayuda y Recursos, fundación Marfan

El grupo se reúne el tercer miércoles de cada mes de 7:30 a 8:30 p.m., hora del este.

Newly Diagnosed & Those Seeking Diagnosis Group
Apr 17
Newly Diagnosed & Those Seeking Diagnosis Group

Are you or a loved one recently diagnosed with Loeys-Dietz syndrome or a related condition? Are you or a loved one seeking diagnosis? If you would like to connect with others who are just starting out on this medical journey, this group is for you.

50+ Support Group
Apr 18
50+ Support Group

Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would you like to connect with others in your age group? If so, this group is for you.